The facts:
- was just diagnosed two weeks ago
- it's incurable and genetic. My big sis reminded me that my paternal grandmother had it. I was only 11 when she passed away so I really don't remember much.
- my beautician found a spot on my scalp a few months back
- I tried OTC (over the counter) stuff but it didn't work
- Went to see a dermatologist
- He performed a biopsy. Translation, he cut the 'spot' out of my scalp so that it could be tested leaving me with a mini-crater in mah head!!
- It didn't really hurt but I felt him cutting. It's healing nicely. :)
- He thought it might be discoid lupus but based on the results of the biopsy and blood work it turned out to be systemic which is the really sucky kind.
- Here's a good explanation of all the types if you're interested.
- Went to see a rhuematologist (sp?)
- He did more blood work and had me do some weird 'exercises'.
- I have no symptoms other than this thing in mah head. Back up....I do have another alopecia type spot in my scalp but you can't see it.
- After visiting the Rhue and my PCP, it has been determined that (1) I am doing extremely well ...............so far and (2) it is not uncommon for one to have lupus and not have many of the common symptoms associated with it.
- No meds for me right now...only an emergency prescription for steroids should I experience a flare up.
- I challenged that method to both doc's but apparently the drugs most folks take while their lupus is active is not something you want to take while it's inactive (which mine is). According to them, the side effects could do more damage especially if nothing is happening...confusing right. Yeah for me too.
- Anyhow, my state could very well change at any minute.....here's hoping it stays this way
- Z has been AMAZING...I couldn't ask for a better support system during this time
- I still haven't told my mom. I was going to while she was here with the kids but I thought better of it. She was beat and I figured it would be better to wait when I go up to Memphis for the reunion so we can have some QUIET one on one time (hopefully).
- I haven't told my other sister either. I was thinking I could also just sit them all down together to have a big pow wow. As you can see I have not thought through the details all that well. :)
In better news, I bought these today from Target. They have them in black in the store and teal and gray online if you're interested.





















